Tune in to “Everyday Health” for update on the Health Heroes!

Making your weekend plans? Make sure to watch “Everyday Health” this Saturday at 11 am on your local ABC television station for a follow up episode revisiting health heroes from previous episodes, including me! “Everyday Health” caught up with us at our fun filled “Day at the Beach” fundraising event for an update on our exciting work. We had so much fun with Joe Manganiello and Chad Lowe that day, I can’t wait to see it on TV and I hope you tune in too. Check Read More

“What an Amazing Year we’ve had!”

Dear friends,
What an amazing year we have had! Claire fought through three difficult hospital stays, a crazy weight loss scare and a couple stays in the Intensive Care Unit and still managed to speak at Tedx in September, do two flashmob events, interview Zac Efron and others via Positively Positive, do two national TV shows highlighting her work to help families and children living with Cystic Fibrosis, and most Read More

My Summer Update!

lights, camera, action! Claire helps spread the word about fighting cystic fibrosis What have I been up to this summer?
I’ve been doing a lot this summer! We started off doing the ABC thing, so I can’t give too many details, but it’s for a program called, “Everyday Health Heroes.” Please look out for it on TV and tune in! I am still not sure who referred us, or how they heard about us, but they were interested in what we were doing. So they came to our house and filmed for three days and we did another flash mob for Read More

Flash Mob Take Two!

That’s right we are doing it again! I am so excited to do our flash mob again because it was so much fun and this time it will be filmed for National TV! Can you believe it? Our first Flash mob in May got so much… Read More